Parents d'enfants atteints de la maladie
Testimonies
Daniel's parents
Although it seems like a very long time ago now that our lovely bouncing boy Daniel was born, iit also sometimes seems like just a few months ago.
The account by Tom's parents
We learned Tom's diagnosis in July 2005, he had just turned one. Everything began in December 2004, he was sixth months old. We thought that Tom had something wrong with his backbone so we went to see a paediatrician who preferred to do a complete check-up. In a few months Tom had had x-rays, MRI's and blood tests.
About little Josephine, by her parents.
Josephine is our first child who we waited for and wanted for 3 years. Everything was going wonderfully well until the famous date: the 21st February 2008.
